About Duchenne muscular dystrophy (DMD)
DMD is a terminal form of muscular dystrophy that occurs in children, primarily boys. The disease, caused by a mutation of the dystrophin gene, results in severe muscle weakness, inability to walk, and loss of respiratory and cardiac function. The fatality
rate is 100%.
Inspiration behind the cause
James “Jamesy” Raffone was diagnosed with DMD at the age of four, on September 13th, 2013. As the son of JAR of Hope founder and CEO, Jim Raffone, Jamesy is the little inspiration behind the organization’s big mission.